“Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand”
I want to apologize for not posting sooner as I know there are many that have been praying and wondering what is going on.
I wish I could say that this is a simple post, and easy to compose, but it’s not so simple, hence the length of time it has taken to post.
Last week Gracyn had her injection for the MIBG scan (detects Neuroblastoma) on Thursday. It was a rough day as Gracyn is old enough now to know pain. They put in an IV and then inject the dye through the IV. She cried so hard through both processes that she broke capillaries in her little cheeks! 😦 But of course she is one tough cookie and was a trooper through all the poking and prodding before and after.
Friday she was scheduled for 11am tests and by that time they were behind by two hours! But thank goodness for the nursery full of toys that kept her mind off of the fact that she was tired and had not eaten since 7pm on Thursday!!!
It was a really long day for all of us and we were finally able to leave around 4:30.
Good news first:
The MIBG scan is showing that the Neuroblastoma is shrinking. The MR shows definitive sizes and compared to the last tests in August, it is also consistent with the MIBG and is showing it is getting smaller and becoming more mature (less malignant). There is a third test which tests her urine, specifically something called catecholamines, and that is also consistent with the other two tests that yes it is shrinking.
The not so good:
The MR results are showing other areas of suspicion in her pelvis and her spine. These areas are not lighting up on the MIBG scan which means it’s possible that it is a different cancer. There are a lot of unknowns right now. We are not 100% positive of the next step. Her doctors are very optimistic. They are always saying Gracyn is a “rare case”. They think it is strange she is showing no signs or symptoms and in fact is thriving wonderfully!!! They also find it peculiar this would be a whole different form of cancer, non related.
We will hopefully have more answers soon. The plan is to go in for more tests in 6 weeks, but they said it could be possible after the board of doctors meet that they would like her to get scheduled as soon as next week.
This has not been an easy week. We feel so blessed to have this beautiful, smart, fun, loving, crazy as ever child. It is hard to fathom why there is evil in this innocent little human. We always ask why, and God – he knows, we do not. But we have to trust in him that all will be well!
So to my prayer warriors- I need you!